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  • About the Experience

    How was your
    overall experience?:

    Very Good

    Comments: Charcot Marie Tooth disease is a complex neuropathy disease due to different strains per person. I was in AFO's for 5 years and kept breaking them because of activity. Frustrated to hopelessness, is an understatement - with lack of empathy and of more than 7 years with other Specialists who looked more confused than me over the CMT! Exasperated, I had my first visit with Dr. Downey. Within minutes he recommended surgery - on both ankles/feet! No More AFO's! I was in complete AWE and overwhelmed with his attentiveness to my medical situation. It was the first time, I'd been told a CONFIDENT YES! I was apprehensive, of course, but wrongly so. His engaging manner never waned throughout our 18 months of 3 surgeries Aug 2018/Dec 2019. I eagerly entrusted him with the 2 more surgeries to complete the extensive reconstruction after first surgery success. My pain was very minimal which surprised me, during the entire course of treatment and presently my gait/walking are a 180 difference!!